Campaign for Help from a Desperate Mom

Hello, as a single mom of 4, who has always tried to make everything work without asking for help, I surrender! I was told that in order to receive we have to make it known that we are in need and despite my personal pride and desire to do his on my own I know that I can't right now. Going to work is  impossible right now with Charles being so sick and everything seems to pile up. Charles has many needs and supplies that are not covered by his health insurance. He has lost his ability to maintain his bladder, mostly at night, therefore I need to have chucks handy. This is adds a lot of stress which is starting to affect my parenting skills. I have less patience than I typically have and seem to be crying a lot. I am emotionally spent! Over the Christmas season my family was blessed by some very amazing people who gave my children a Christmas to remember and also helped me get a new washer and dryer because mine was broke. I can never thank everyone enough.

I now need to ask for some community support. Chuck Cheese aka My hero Charlie, needs multiple supplements that are not covered by insurance. This happens to many families with children that suffer with Mitochondrial disease. We have T-shirts and hoodies available for purchase as well as a paypal link in the sidebar. Please consider helping to energize my baby so that maybe we can get him into school more and increase his quality of life. I miss my baby before he got sick!

What is Mitochondrial Disease?

Mitochondrial diseases result from failures of the mitochondria, specialized compartments present in every cell of the body except red blood cells. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. When they fail, less and less energy is generated within the cell. Cell injury and even cell death follow. If this process is repeated throughout the body, whole systems begin to fail, and the life of the person in whom this is happening is severely compromised. The disease primarily affects children, but adult onset is becoming more and more common.

Diseases of the mitochondria appear to cause the most damage to cells of the brain, heart, liver, skeletal muscles, kidney and the endocrine and respiratory systems.

Depending on which cells are affected, symptoms may include loss of motor control, muscle weakness and pain, gastro-intestinal disorders and swallowing difficulties, poor growth, cardiac disease, liver disease, diabetes, respiratory complications, seizures, visual/hearing problems, lactic acidosis, developmental delays and susceptibility to infection.

- United Mitochondrial Disease Foundation ®

Charlie Scully

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